micropreemie mommy

just a supermom juggling two former micropreemies with special healthcare needs (and both are now HOME!), work, love, home… and apparently a blog. feel free to roam about and hopefully learn about how to: be a mom, be an imperfect mom, be an imperfect mom in an imperfect situation… and be an imperfect mom in an imperfect situation and still have a sense of humor (and her sanity).

resources for other micropreemie mommies

as i travel down this road of nicus and pumping rooms and parent sleep spaces and kangarooing, i want to share some things i’ve learned or sources that have helped me through some of the tougher times. i hope to be adding to this list as i go on.

- prematurity.org – lengthy resource of links for every nicu thing you could think of… and some you haven’t…

- micropreemies.com – good resources for micro-preemie issues

- micropreemie yahoogroup – message board for families of babies born two pounds or less

- march of dimes - because every child should be born healthy

- aaron’s tracheostomy page - resources for pediatric trach care

- franciscans hospital for children - madeline is in the pulmonary rehab program at this hospital

- it’s you and me and baby - licensed speech-language pathologist dedicated to helping families connect with their babies through methods of communication, including touch therapy

- hope parent network at chb – home oxygen parent exchange at childrens hospital boston – helping families of nicu graduates meet and discuss challenges in the boston area

2 responses to “resources for other micropreemie mommies”

Liz McCarthy March 16th, 2010 at 05:57

Thought you might want to add a link to my webpage, http://www.MicroPreemies.com which has a lot of resources as well as the link to the micro preemie support group (over 700 members)

Liz
Kristen April 2nd, 2010 at 16:56

I would love to have you add a link to my blog also at http://itsyouandmebaby1.blogspot.com. I am licensed speech-language pathologist dedicated to helping families connect with their babies through methods of communication, including touch therapy. Thanks so much!!

Kristen